A Patient Education Subcommittee comprising members from the PES Education Council and the American Academy of Pediatrics Section on Endocrinology have been working together since 2010 to develop a series of patient education fact sheets covering topics such as growth, thyroid, puberty, diabetes, adrenal, PCOS, and vitamin D. All patient education sheets were updated in 2018. On behalf of both organizations, we thank the contributors of these very important resources.

Permission to reproduce and provide to parents/patients for noncommercial, educational purposes granted with acknowledgement.

Search by Title

Clinical Topic

Audience

Acquired Hypothyroidism

Hypothyroidism • Thyroid Disorders

Acquired Hypothyroidism in Children: A Guide for Families What is Hypothyroidism? Hypothyroidism refers to an underactive thyroid gland that does not produce enough of the active thyroid hormones triiodothyronine (T3)…

Adrenal Insufficiency

Adrenal • Adrenal Insufficiency

Adrenal Insufficiency: A Guide for Families What is Adrenal Insufficiency? The adrenal gland is located on top of the kidney and makes 3 types of hormones: corticosteroids or glucocorticoids (the…

Congenital Adrenal Hyperplasia: A Guide for Families What is Congenital Adrenal Hyperplasia (CAH)? The adrenal glands are located on top of the kidneys and produce several different hormones. Congenital adrenal…

Congenital Hypothyroidism

Hyperthyroidism • Thyroid Disorders

Congenital Hypothyroidism: A Guide for Families What is Congenital Hypothyroidism? Hypothyroidism refers to an underactive thyroid gland. Congenital hypothyroidism occurs when a baby is born without the ability to make…

Constitutional Growth Delay

Growth • Impaired Growth

Constitutional Growth Delay and Familial Short Stature: A Guide for Families What is Short Stature? Doctors usually define short stature based on standard growth charts, rather than how a child…

Delayed Puberty – Boys

Delayed Puberty • Male • Puberty Disorders

Delayed Puberty in Boys: A Guide for Families How is Delayed Puberty in Boys Defined? Boys can start puberty at a wide range of ages, with 95% starting between the…

Delayed Puberty – Girls

Delayed Puberty • Female • Puberty Disorders

Delayed Puberty in Girls: A Guide for Families How is Delayed Puberty in Girls Defined? Puberty starts when the pituitary gland begins to produce two hormones, luteinizing hormone (called LH)…

Genetic Testing

Genetic Disorders

Genetic Testing: A Guide for Families What is Genetic Testing? Genetic testing looks for changes in the structure of an individual’s genes. Genes are the DNA instructions that are inherited,…

Growth Hormone Deficiency: A Guide for Families What is Growth Hormone Deficiency? Growth hormone deficiency is a rare cause of growth failure in which the child does not make enough…

Growth Hormone Injections: Useful Tips for Parents What is Growth Hormone Treatment? Growth hormone is a protein hormone that is usually made by the pituitary gland to help your child…