A Patient Education Subcommittee comprising members from the PES Education Council and the American Academy of Pediatrics Section on Endocrinology have been working together since 2010 to develop a series of patient education fact sheets covering topics such as growth, thyroid, puberty, diabetes, adrenal, PCOS, and vitamin D. All patient education sheets were updated in 2018. On behalf of both organizations, we thank the contributors of these very important resources.

Permission to reproduce and provide to parents/patients for noncommercial, educational purposes granted with acknowledgement.

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Acquired Hypothyroidism

Hypothyroidism • Thyroid Disorders

Acquired Hypothyroidism in Children: A Guide for Families What is Hypothyroidism? Hypothyroidism refers to an underactive thyroid gland that does not produce enough of the active thyroid hormones triiodothyronine (T3)…

Adrenal Insufficiency

Adrenal • Adrenal Insufficiency

Adrenal Insufficiency: A Guide for Families What is Adrenal Insufficiency? The adrenal gland is located on top of the kidney and makes 3 types of hormones: corticosteroids or glucocorticoids (the…

Bisphosphonate Therapy

Bone and Mineral Metabolism

Pamidronate and Zoledronic Acid Infusions What are Pamidronate and Zoledronic Acid? Pamidronate and zoledronic acid are medications that belong to a class of drugs known as “bisphosphonates”. Why are these…

Bone Density Testing

Bone and Mineral Metabolism

Bone density test in children Your child’s doctor has ordered a bone density test for your child.  This may be because your child has a history of multiple fractures, or…

Bone Health

Bone and Mineral Metabolism

Bone Health Your bones are an important part of your body and store very important minerals. Did you know that your bones gain strength until you are 20-30 years of…

Cancer Survivorship

Tumor Related and Neuroendocrine

Endocrinology Late Effects in Cancer Survivors: A Guide for Families Advances over the years have allowed more children to “beat cancer” and survive into adulthood. Unfortunately, cancer treatments can cause…

Congenital Adrenal Hyperplasia: A Guide for Families What is Congenital Adrenal Hyperplasia (CAH)? The adrenal glands are located on top of the kidneys and produce several different hormones. Congenital adrenal…

Congenital Hypothyroidism

Hyperthyroidism • Thyroid Disorders

Congenital Hypothyroidism: A Guide for Families What is Congenital Hypothyroidism? Hypothyroidism refers to an underactive thyroid gland. Congenital hypothyroidism occurs when a baby is born without the ability to make…

Constitutional Growth Delay

Growth • Impaired Growth

Constitutional Growth Delay and Familial Short Stature: A Guide for Families What is Short Stature? Doctors usually define short stature based on standard growth charts, rather than how a child…

Craniopharyngioma

Tumor Related and Neuroendocrine

What is Craniopharyngioma? Craniopharyngioma is a brain tumor in the midline of the brain. This is located near the hypothalamus and pituitary gland, and where the two optic nerves cross…