Patient Education
For a list of patient education fact sheets, visit the Patient Education page.
Transition Toolkit for Patients and Professionals
This toolkit helps patients gain a greater awareness of their health history and health needs as they transition into adult self-management.
Additional External Resources
Genetics, Including Klinefelter Syndrome and Turner syndrome
- Search for genetic conditions, rare syndromes
- Newborn Screen info
- Klinefelter Syndrome
- Turner Syndrome Society of the U.S. 1
Adrenal Insufficiency
Bone
- Bone Mineral Density calculator with Z score adjustment for height
- Bone Physiology
- Elemental Calcium Calculator
Blood Pressure
Growth
- Standardized Height and Weight Calculator NHANES
- Predicted adult height and seeing the SD for the growth velocity
- CDC clinical growth charts
Converting Units
Cancer Survivorship
Obesity
Puberty
Hyperinsulinism
Celiac Disease
Polycystic Ovarian Syndrome
- PCOS fact sheet
- http://www.ae-society.org/sub/resources.php
- https://jeanhailes.org.au/health-a-z/pcos
Diabetes Resources
- http://www.childrenwithdiabetes.com
- http://www.tudiabetes.org
- http://www.estudiabetes.org
- https://myglu.org/
- http://www.barbaradaviscenter.org (click on clinical resources)
- http://www.diabetes.org
- Insulin dosing calculator (Nationwide children’s)
Transgender Resources
- http://transhealth.ucsf.edu
- http://www.transstudent.org/sites
- http://www.nytimes.com/2015/05/06/opinion/transgender-resources.html?_r=0
Family Resources – Disorders of Sex Development (DSD) or Sex Chromosomes
- Animations on Genitalia Development (Toronto Hospital for Sick Children)
- Accord Alliance
- Advocates for Informed Choice (AIC)
- Androgen Insensitivity Syndrome Support Group
- CARES Foundation (Congenital Adrenal Hyperplasia Education & Support)
- DSD Guidelines a project of the Consortium on Disorders of Sex Development
- Hypospadias & Epispadias Association
- The Magic Foundation
- MRKH Organization – A support group for women with Mayer-Rokitansky-Kuster-Hauser Syndrome (also known as MRKH, Mullerian Agenesis, Vaginal Agenesis, and Congenital Absence of Vagina).