Industry Sponsored Symposium: Diagnostic Journey of a Patient with Suspected Skeletal Dysplasia
Wednesday, November 13th, 2024 | 6:00–7:00 pm ET
Sponsored by BioMarin
PROGRAM DESCRIPTION
Learn about the multifaceted diagnostic journey of a patient with suspected skeletal dysplasia.
45-minute presentation | 15-minute audience Q&A
We hope you will join us for a conversation featuring:
Speaker:
CARLOS FERREIRA, MD
Staff Clinician
Metabolic Medicine Branch
Skeletal Genomics Unit
National Human Genome Research Institute (NHGRI)
Bethesda, MD
Moderator:
ANDREW DAUBER, MD, MMSc
Chief of Endocrinology
Children’s National Hospital
Washington, DC
AAP FLEXPEDS (Female Leadership and Excellence in Pediatric Subspecialities) presents: Supporting the Careers of Women Pediatric Physician Scientists – What the NIH has to offer!
November 6th at 4-5:30 pm ET – Women and allies are welcome to attend!
Learning Objectives:
By the end of the webinar, participants will be able to:
1. Understand how trainee and early career women can use the National Institutes of Health (NIH) programs to successfully start and support a career as a woman physician scientist in pediatric
2. Identify programs for funding of research grants and funding supplements to support a career as a woman scientist and caregiver
3. Identify programs to help financially support the reentry of a physician scientist following a leave
Panelists:
- Dr. Karen Winer is the acting chief of Pediatric Growth & Nutrition Branch in the NICHD. For many years, she has served as the program director for the Pediatric Scientist Development Program and the Child Health Research Career Development Award Program, which are national physician-scientist K12 mentoring programs. Dr. Winer completed subspecialty training in pediatric endocrinology at the NIH.
- Catherine Gordon, MD, MS, is clinical director and a senior investigator at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), part of the National Institutes of Health. In her new role, she leads NICHD’s intramural clinical research program to improve understanding of the biological, medical, reproductive, and behavioral aspects of typical and atypical human development. She is also the secretary/treasurer at the APS. She is subspecialized in both adolescent medicine and pediatric endocrinology with research experience in adolescent bone health.
- Erica K. Rosemond is the acting deputy director of NCATS' Division of Clinical Innovation (DCI) and chief of the Clinical and Translational Science Awards (CTSA) Program Branch directing the CTSA Program institutions. She holds a Ph.D. in pharmaceutical sciences, with specialization in neurosciences. Prior to joining NCATS, Rosemond managed grant portfolios at the National Cancer Institute and the National Institute of Mental Health, supporting research education, career development and training.
- Vivian Ota Wang, PhD, FACMG, CGC currently serves as the deputy director of the Office of Research on Women’s Health (ORWH). As a genetic counselor, genomicist, and psychologist, she has experiences in research, education, science policy, and ethics. The ORWH has a diverse range of programs, initiatives, and policies to improve the health of all women at all stages of the life course and to support women in biomedical fields at all stages of their careers.
Hosted by
Barral, Romina; Dammann, Christiane; Hsieh, Helen; Singer, Durga
CME
Credit is NOT available for this webinar. Pending consent from the presenters, the webinar will be recorded and posted on the FLEXPEDS website. A recording will also be sent to those who register.
Industry Sponsored Symposium: A DEEPER LOOK INTO ACHONDROPLASIA
Wednesday, October 30, 2024
6:00 - 7:00 PM Eastern
Sponsored by: BioMarin
PROGRAM DESCRIPTION
Join us for an educational webinar covering essential facets of achondroplasia: its root cause, how the condition affects the body, and impacts families, and ways to recognize and manage its complications. This is a great opportunity to gain learnings that will empower you to counsel and treat your dysplasia patients with empathy and confidence.
This educational program, led by a clinical expert in achondroplasia, will address questions including:
- The underlying cause of impaired bone growth
- How impaired bone growth could lead to multi-systemic complications throughout life
- Healthcare specialists involved in monitoring and caring for individuals with achondroplasia
Speaker
Philippe Backeljauw, MD,
Professor of Pediatrics
Cincinnati Children's Hospital Medical Center,
Cincinnati, OH
Industry Sponsored Symposium: Evolving Treatment Paradigms for Growth Hormone Deficiency: Integrating Novel Therapies
Tuesday, July 30, 2024
7:00 PM - 8:00 PM Eastern
Provided by Haymarket Medical Education
Supported by an educational grant from Novo Nordisk Inc.
PROGRAM DESCRIPTION
Join Drs. Craig Alter, Sara A. DiVall, and Bradley Miller for an engaging discussion of optimal strategies for pediatric GHD management, from diagnosis to the formulation of comprehensive, long-term treatment plans. The panel dialogue will be followed by a “hot seat” discussion of pressing topics in real-world clinical practice, including the use of novel LAGH therapies.
LEARNING OBJECTIVES
After participating in this educational activity, clinicians will be better able to:
- Utilize presentation, genetic, and laboratory findings to make a definitive diagnosis of growth hormone deficiency (GHD)
- Evaluate the efficacy and safety of novel long-acting growth hormone therapies and the place of these agents in evolving GHD treatment paradigms
- Implement strategies to improve treatment adherence and transitions of care for pediatric patients with GHD
AGENDA - 7:00 – 7:30 PM -Part 1: Expert Perspectives
Topics to be discussed by the expert faculty panel include:
- Identifying GHD and Making an Early, Definitive Diagnosis (10 minutes)
- Exploring Long-acting Growth Hormone (LAGH) Formulations (10 minutes)
- Facilitating Treatment Adherence and Transition to Adult Care (10 minutes)
7:30 – 8:00 PM - Part 2: Experts In the Hot Seat
The program Chair will elicit responses from the panel surrounding pressing topics in pediatric GHD care, including:
- Overcoming diagnostic challenges
- Addressing inherent barriers when making a diagnosis of GHD; key nuances of available testing modalities
- The ins and outs of LAGH
- Potential differences in dose initiation of various therapies; adjusting therapy and monitoring efficacy
- Fostering patient/caregiver adherence
- Practical strategies for improving adherence, tips for pivoting from pediatric to adult care
- Q&A
FACULTY
Craig Alter, MD
Director Neuroendocrinology
Professor of Clinical Pediatrics
Children’s Hospital of Philadelphia
Perelman School of Medicine at the University of Pennsylvania
Philadelphia, Pennsylvania
Sara A. DiVall, MD
Associate Professor, Department of Pediatrics
University of Washington
Program Director, Pediatric Endocrinology Fellowship
Seattle Children’s Hospital
Seattle, Washington
Bradley S. Miller, MD, PhD
Director, Division of Endocrinology
Professor, Department of Pediatrics
University of Minnesota Medical School
M Health Fairview Children’s Hospital
Minneapolis, Minnesota
Industry Sponsored Symposium: DETECT— Advances in the Delayed-Onset of Type 1 Diabetes: Strategies to Improve Awareness and Care for the Practicing Clinician
July 24th, 2024, from 3:00 PM – 4:15 PM Eastern
Sponsored by Med Learning Group
Session Description:
This virtual symposium will have 2 highly regarded faculty speakers. The program design allows for a high level of interactivity with case-based discussion and Q&A as well as breaks in the faculty presentations where the learners utilize Whiteboard and 2D Ultra 4K HD animations to reduce the cognitive load required for uptake of key learnings on the mechanism of action of CD3 and CD20 antagonists and their roles in T1D disease etiopathogenesis as well as clinical monitoring for autoantibody positive individuals: glucometer testing, HbA1c, OGTT, etc. and frequency in use. In addition, we will also be partnering with the Public Health Foundation (PHF) for program awareness and for simulcasting the live program through their network, which will vastly extend the reach of this education.
Speakers/Faculty:
Dr. Richard Oram, MD, PhD, BMBCh, MRCP
Associate Professor, Diabetes UK Harry Keen Fellow
Institute of Biomedical and Clinical Science and NIHR Exeter Clinical Research Facility
Exeter, UK
Emily K. Sims, MD
Pediatric Endocrinologist
Riley Hospital for Children
Indianapolis, IN
Learning Objectives:
Upon completion of one or more of the proposed activities and using the resources provided, HCPs will have improved ability to:
-
- Describe the clinical presentation of T1D in adults compared to children
- Identify appropriate autoantibody screening strategies for T1D, including type, frequency, and number
- Interpret results from screening protocols to drive management decisions
- Discuss the latest clinical evidence for efficacy and tolerability of newly approved and investigational immunomodulatory agents
- Implement strategies for appropriate clinical monitoring and early screening in individuals at highest risk
Sponsored by Med Learning Group
The Clinical Approach to the Child with Lipodystrophy: The Importance of Timely Diagnosis and Intervention
October 30, 2023 from 7:00 – 8:00pm EST
Description:The expert panel will present data detailing the diagnosis and management of pediatric lipodystrophy patients.Moderator:Dr. Ambika AshrafFaculty:Dr. Giovani Ceccarini, Dr. Nivedita Patni, Dr. Rebecca Brown Learning Objectives:
- Understand the role of adipose tissue and leptin in normal physiology.
- Discuss the clinical presentation of lipodystrophy in pediatrics.
- Understand the importance of timely diagnosis and treatment in the pediatric population.
Sponsored by Amryt Pharma
Click here to view the webinar
Early Identification and Effective Management of Hypercholesterolemia in Children
September 28 from 7:00 – 8:00pm EST
This interactive virtual symposium, sponsored by Regeneron Medical Affairs, with Don P. Wilson, MD, a renowned pediatric lipidologist, will focus on diagnosing lipid disorders (including familial hypercholesterolemia) and managing treatment goals in children.
Sponsored by Regeneron Pharmaceuticals, Inc.
Click here to view the webinar: https://spaces.hightail.com/space/kJ13rqNhVV
Achondroplasia a Multidisciplinary Conversation on Comprehensive Care
September 14 from 6:00 – 7:00pm EST
Achondroplasia (Ach), the most common skeletal dysplasia with disproportionate short stature, is characterized by a number of medical, functional, and psychosocial challenges across the lifespan of an individual. Up until recently, the treatment of the developmental complications of Ach involved only symptomatic management, surgical intervention, and lifelong follow-up care. An improved understanding of the molecular pathways involved in Ach has resulted in the development of new and emerging targeted therapies for this condition. These novel agents aim to restore bone growth and prevent many of the medical conditions associated with Ach. In this virtual live symposium, an expert panel will address the complications associated with Ach, current care recommendations, strategies for coordination of care with specialists, and new and emerging therapies for Ach.
https://www.medscape.org/viewarticle/996822
Herself in Every Moment: A Peer Conversation on the Importance of Individualized Treatment for Children with CPP
This presentation features a patient case and relevant data from two newly published studies and focuses on the need for timely and ongoing treatment.
Click here for more information and the recording
Improving Outcomes in Pediatric Growth Hormone Deficiency With Effective Diagnosis and Personalized Management Strategies
July 13, 2023 7:00-8:00 PM ET
The availability of recombinant human growth hormone (r-hGH) has facilitated wider treatment of growth hormone deficiency. Join this CME-certified PeerView MasterClass & Practicum symposium to increase your knowledge and competence about the diagnosis and management of growth hormone deficiency with r-hGH therapy, including long-acting growth hormone agents.
Expert faculty will review current guidelines for growth hormone deficiency diagnosis, growth hormone therapy indications, and characteristics of available and emerging growth hormone therapies. You will also gain a better understanding of how to address patient and/or caregiver needs and preferences to promote r-hGH adherence.