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Turner Syndrome

Home / Special Interest Groups / Turner Syndrome

Chairs

Iris Gutmark-Little

Roopa Kanakatti Shankar

Karen Oerter Klein

BOD Liaison

Philippe F. Backeljauw

Mission Statement

In order to enhance the clinical care of TS patients, the PES TS SIG aims to improve dissemination of knowledge, increase awareness, establish mechanisms for research and clinical collaborations, and organize advocacy efforts.

Goals and Objectives

  • Educational Efforts
    • Educate and promote interaction and exchange of information amongst pediatric endocrinologists and other health care providers of TS patients to ensure safe and appropriate clinical care.
    • Educate pediatricians and other primary care providers on the clinical presentation and needs of TS patients, in order to decrease the age of diagnosis and therefore lead to early referral to specialists.
    • Establish and maintain a PES-sponsored website for use by TS providers.
      Develop a curriculum for pediatric and internal medicine residents, pediatric endocrine fellows, and adult endocrine fellows for the management of TS patients.
  • Research Efforts
    • Identify crucial research topics and develop resources to accomplish them, and promote dissemination of results in targeted journals.
    • Create a database of TS programs and providers to facilitate networking and information/resource sharing.
    • Develop a TS registry to set the basis for clinical and outcomes research.
  • Advocacy
    • Help achieve better health care access for patients by informing policy.
    • Increase the funding pool for TS-centered research via contact with NIH officials or other agencies.
    • Increase exposure of TS topics to primary care providers (pediatric and adult) and the general public.

SIG Members

  • Dania Al-Hamad
  • Philippe F. Backeljauw ²
  • Vaneeta Bamba
  • Melissa A. Carlucci
  • Joseph T. Cernich
  • Ethel Clemente
  • James Gardner
  • Iris Gutmark-Little ¹
  • Reema Lynn Habiby
  • Roopa Kanakatti Shankar ¹
  • Christel Keefe
  • Karen Oerter Klein ¹
  • Jessica Kremen
  • Jennifer Law
  • Lynne L. Levitsky
  • Jadranka Popovic
  • Krishnaswamy Rao
  • Robert L. Rosenfield
  • Karen Rubin
  • Sejal Shah
  • Jeanie B. Tryggestad

 

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McLean, Virginia 22101

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info@pedsendo.org

  • Clinical
    Resources
    • Clinical Resource Library
    • Special Interest Groups
    • Online Community
    • Insurance Appeal Letter Templates
    • And the survey says…
  • Patient
    Resources
    • What is a Pediatric Endocrinologist?
    • Patient Education
    • Find a Pediatric Endocrinologist
    • Camps
    • Clinical Studies
    • Transition Toolkit
  • Education
    & Events
    • Events Calendar
    • PES Annual Meeting
    • Board Review Course
    • Online Education
    • Fellows, Residents, and Students
      • Practical Clinical Tools
      • Clinical Update and Case Discussion Course
      • Spring Fellows Retreat
      • ESPE E-Learning Web Portal
      • Mentoring Program
      • SEED
  • News &
    Publications
    • PES News & Announcements
    • Journal
  • Careers
    • Job Board
    • Pediatric Endocrine Program Directors
    • Certification
      • Maintenance of Certification (MOC)
      • Ethics in Pediatric Endocrinology MOC
      • PES Obesity SIG MOC/CME Activity
  • Grants
    & Awards
    • Senior Awards and Lectureships
    • Fellows and Junior Faculty Awards
    • Grants
  • About
    PES
    • About PES
      • Contact
      • Donate
      • Leadership
      • PES Committees
      • Society History
    • PES Membership
      • Join PES
    • Partner with Us
      • Mission Alliance Partners (MAP)
      • Become a Mission Alliance Partner
      • Exhibit & Sponsorship Opportunities
      • Mailing List and Advertising
      • Conflict of Interest Statement
      • PES Mission Alliance Partner Spotlight
    • Policies and Strategy
      • Equity, Diversity and Inclusion Initiative
      • Strategic Plan
      • Policies and Bylaws
      • Public Policy and Advocacy
  • Join PES
  • Contact
  • Find a Pediatric Endocrinologist
  • Contact
  • Join PES

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