Industry Sponsored Symposium: From Referral to Resolution: Untangling the Diagnosis and Treatment of Lipodystrophy
Wednesday, January 29th, 2025 | 6:00–6:20 pm ET
Sponsored by Chiesi
PROGRAM DESCRIPTION
The educational webinar will be a brief case presentation by Dr. Nivedita Patni of a pediatric patient with Acquired Generalized Lipodystrophy. Dr. Patni will discuss the patient presentation, diagnosis, and management strategies she utilized as well as best practices in lipodystrophy. The 20-minute webinar will have the following objectives:
Learning objectives:
- To identify the hallmark clinical signs and symptoms associated with lipodystrophy syndromes
- To discuss the utilization of various tools to help establish a diagnosis for lipodystrophy
- To gain a practical understanding of the management of patients with lipodystrophy and key considerations for treatment
Speaker:
CARLOS FERREIRA, MD
Nivedita Patni M.D. Associate Professor of Pediatrics Division of Pediatric Endocrinology UT Southwestern Medical Center
- Password: PAN2025
Industry Sponsored Symposium: Diagnostic Journey of a Patient with Suspected Skeletal Dysplasia
Wednesday, November 13th, 2024 | 6:00–7:00 pm ET
Sponsored by BioMarin
PROGRAM DESCRIPTION
Learn about the multifaceted diagnostic journey of a patient with suspected skeletal dysplasia.
45-minute presentation | 15-minute audience Q&A
We hope you will join us for a conversation featuring:
Speaker:
CARLOS FERREIRA, MD
Staff Clinician
Metabolic Medicine Branch
Skeletal Genomics Unit
National Human Genome Research Institute (NHGRI)
Bethesda, MD
Moderator:
ANDREW DAUBER, MD, MMSc
Chief of Endocrinology
Children’s National Hospital
Washington, DC
AAP FLEXPEDS (Female Leadership and Excellence in Pediatric Subspecialities) presents: Supporting the Careers of Women Pediatric Physician Scientists – What the NIH has to offer!
November 6th at 4-5:30 pm ET – Women and allies are welcome to attend!
Learning Objectives:
By the end of the webinar, participants will be able to:
1. Understand how trainee and early career women can use the National Institutes of Health (NIH) programs to successfully start and support a career as a woman physician scientist in pediatric
2. Identify programs for funding of research grants and funding supplements to support a career as a woman scientist and caregiver
3. Identify programs to help financially support the reentry of a physician scientist following a leave
Panelists:
- Dr. Karen Winer is the acting chief of Pediatric Growth & Nutrition Branch in the NICHD. For many years, she has served as the program director for the Pediatric Scientist Development Program and the Child Health Research Career Development Award Program, which are national physician-scientist K12 mentoring programs. Dr. Winer completed subspecialty training in pediatric endocrinology at the NIH.
- Catherine Gordon, MD, MS, is clinical director and a senior investigator at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), part of the National Institutes of Health. In her new role, she leads NICHD’s intramural clinical research program to improve understanding of the biological, medical, reproductive, and behavioral aspects of typical and atypical human development. She is also the secretary/treasurer at the APS. She is subspecialized in both adolescent medicine and pediatric endocrinology with research experience in adolescent bone health.
- Erica K. Rosemond is the acting deputy director of NCATS' Division of Clinical Innovation (DCI) and chief of the Clinical and Translational Science Awards (CTSA) Program Branch directing the CTSA Program institutions. She holds a Ph.D. in pharmaceutical sciences, with specialization in neurosciences. Prior to joining NCATS, Rosemond managed grant portfolios at the National Cancer Institute and the National Institute of Mental Health, supporting research education, career development and training.
- Vivian Ota Wang, PhD, FACMG, CGC currently serves as the deputy director of the Office of Research on Women’s Health (ORWH). As a genetic counselor, genomicist, and psychologist, she has experiences in research, education, science policy, and ethics. The ORWH has a diverse range of programs, initiatives, and policies to improve the health of all women at all stages of the life course and to support women in biomedical fields at all stages of their careers.
Hosted by
Barral, Romina; Dammann, Christiane; Hsieh, Helen; Singer, Durga
CME
Credit is NOT available for this webinar. Pending consent from the presenters, the webinar will be recorded and posted on the FLEXPEDS website. A recording will also be sent to those who registered.
Industry Sponsored Symposium: Evolving Treatment Paradigms for Growth Hormone Deficiency: Integrating Novel Therapies
Tuesday, July 30, 2024
7:00 PM - 8:00 PM Eastern
Provided by Haymarket Medical Education
Supported by an educational grant from Novo Nordisk Inc.
PROGRAM DESCRIPTION
Join Drs. Craig Alter, Sara A. DiVall, and Bradley Miller for an engaging discussion of optimal strategies for pediatric GHD management, from diagnosis to the formulation of comprehensive, long-term treatment plans. The panel dialogue will be followed by a “hot seat” discussion of pressing topics in real-world clinical practice, including the use of novel LAGH therapies.
LEARNING OBJECTIVES
After participating in this educational activity, clinicians will be better able to:
- Utilize presentation, genetic, and laboratory findings to make a definitive diagnosis of growth hormone deficiency (GHD)
- Evaluate the efficacy and safety of novel long-acting growth hormone therapies and the place of these agents in evolving GHD treatment paradigms
- Implement strategies to improve treatment adherence and transitions of care for pediatric patients with GHD
AGENDA - 7:00 – 7:30 PM -Part 1: Expert Perspectives
Topics to be discussed by the expert faculty panel include:
- Identifying GHD and Making an Early, Definitive Diagnosis (10 minutes)
- Exploring Long-acting Growth Hormone (LAGH) Formulations (10 minutes)
- Facilitating Treatment Adherence and Transition to Adult Care (10 minutes)
7:30 – 8:00 PM - Part 2: Experts In the Hot Seat
The program Chair will elicit responses from the panel surrounding pressing topics in pediatric GHD care, including:
- Overcoming diagnostic challenges
- Addressing inherent barriers when making a diagnosis of GHD; key nuances of available testing modalities
- The ins and outs of LAGH
- Potential differences in dose initiation of various therapies; adjusting therapy and monitoring efficacy
- Fostering patient/caregiver adherence
- Practical strategies for improving adherence, tips for pivoting from pediatric to adult care
- Q&A
FACULTY
Craig Alter, MD
Director Neuroendocrinology
Professor of Clinical Pediatrics
Children’s Hospital of Philadelphia
Perelman School of Medicine at the University of Pennsylvania
Philadelphia, Pennsylvania
Sara A. DiVall, MD
Associate Professor, Department of Pediatrics
University of Washington
Program Director, Pediatric Endocrinology Fellowship
Seattle Children’s Hospital
Seattle, Washington
Bradley S. Miller, MD, PhD
Director, Division of Endocrinology
Professor, Department of Pediatrics
University of Minnesota Medical School
M Health Fairview Children’s Hospital
Minneapolis, Minnesota
The Clinical Approach to the Child with Lipodystrophy: The Importance of Timely Diagnosis and Intervention
October 30, 2023 from 7:00 – 8:00pm EST
Description:The expert panel will present data detailing the diagnosis and management of pediatric lipodystrophy patients.Moderator:Dr. Ambika AshrafFaculty:Dr. Giovani Ceccarini, Dr. Nivedita Patni, Dr. Rebecca Brown Learning Objectives:
- Understand the role of adipose tissue and leptin in normal physiology.
- Discuss the clinical presentation of lipodystrophy in pediatrics.
- Understand the importance of timely diagnosis and treatment in the pediatric population.
Sponsored by Amryt Pharma
Click here to view the webinar
Early Identification and Effective Management of Hypercholesterolemia in Children
September 28 from 7:00 – 8:00pm EST
This interactive virtual symposium, sponsored by Regeneron Medical Affairs, with Don P. Wilson, MD, a renowned pediatric lipidologist, will focus on diagnosing lipid disorders (including familial hypercholesterolemia) and managing treatment goals in children.
Sponsored by Regeneron Pharmaceuticals, Inc.
Click here to view the webinar
Achondroplasia a Multidisciplinary Conversation on Comprehensive Care
September 14 from 6:00 – 7:00pm EST
Achondroplasia (Ach), the most common skeletal dysplasia with disproportionate short stature, is characterized by a number of medical, functional, and psychosocial challenges across the lifespan of an individual. Up until recently, the treatment of the developmental complications of Ach involved only symptomatic management, surgical intervention, and lifelong follow-up care. An improved understanding of the molecular pathways involved in Ach has resulted in the development of new and emerging targeted therapies for this condition. These novel agents aim to restore bone growth and prevent many of the medical conditions associated with Ach. In this virtual live symposium, an expert panel will address the complications associated with Ach, current care recommendations, strategies for coordination of care with specialists, and new and emerging therapies for Ach.
Herself in Every Moment: A Peer Conversation on the Importance of Individualized Treatment for Children with CPP
This presentation features a patient case and relevant data from two newly published studies and focuses on the need for timely and ongoing treatment.
Click here for more information and the recording
Improving Outcomes in Pediatric Growth Hormone Deficiency With Effective Diagnosis and Personalized Management Strategies
July 13, 2023 7:00-8:00 PM ET
The availability of recombinant human growth hormone (r-hGH) has facilitated wider treatment of growth hormone deficiency. Join this CME-certified PeerView MasterClass & Practicum symposium to increase your knowledge and competence about the diagnosis and management of growth hormone deficiency with r-hGH therapy, including long-acting growth hormone agents.
Expert faculty will review current guidelines for growth hormone deficiency diagnosis, growth hormone therapy indications, and characteristics of available and emerging growth hormone therapies. You will also gain a better understanding of how to address patient and/or caregiver needs and preferences to promote r-hGH adherence.