Title: Patient Education in Turner Syndrome: Challenges and Opportunities
Speakers: Kristina Suorsa-Johnson, PhD, Ashley W. Wong, CGC
Brief summary: This webinar will discuss disclosure of Turner Syndrome to parents and their children with a focus on how to approach challenging situations. These may include delayed sharing of the diagnosis from parents to their offspring or concerns about revealing potential infertility as it relates to one’s culture, religion or views of marriage.
- Understand the principles to consider when disclosing the diagnosis of Turner syndrome.
- Gain insights into factors that can affect how one receives this information.
- Acquire tools to use to navigate challenging situations.