A Patient Education Subcommittee comprising members from the PES Education Council and the American Academy of Pediatrics Section on Endocrinology have been working together since 2010 to develop a series of patient education fact sheets covering topics such as growth, thyroid, puberty, diabetes, adrenal, PCOS, and vitamin D. All patient education sheets were updated in 2018. On behalf of both organizations, we thank the contributors of these very important resources.
Permission to reproduce and provide to parents/patients for noncommercial, educational purposes granted with acknowledgement.
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Delayed Puberty in Boys: A Guide for Families How is Delayed Puberty in Boys Defined? Boys can start puberty at a wide range of ages, with 95% starting between the…
Delayed Puberty in Girls: A Guide for Families How is Delayed Puberty in Girls Defined? Puberty starts when the pituitary gland begins to produce two hormones, luteinizing hormone (called LH)…
If you are planning pregnancy, think you are pregnant or are confirmed to be pregnant, let your diabetes team know right away so they can help you with proper management….
What is diabetes insipidus (DI)? Diabetes insipidus is a rare disorder in which a person urinates an excessive amount, is more thirsty than usual, and drinks an excessive amount of…
What is DiGeorge Syndrome? DiGeorge syndrome is a genetic condition where a small part of chromosome 22 is missing. A patient with DiGeorge syndrome is missing a segment in one…
Having diabetes does not mean you cannot drive a car, but some extra steps are needed to make sure you are driving safely! How can diabetes affect my driving? •…
How is it given? • Given as an injection once a week How do I give the injection? • Exenatide comes in a “pen” form. Add a needle to the…
Genetic Testing: A Guide for Families What is Genetic Testing? Genetic testing looks for changes in the structure of an individual’s genes. Genes are the DNA instructions that are inherited,…
What are glycogen storage diseases? Glycogen storage diseases (or GSDs), as the name suggests, are a group of conditions caused by an inability to store or release glycogen in the…